Our institutional partners
In 2017, within the framework of the European Union, the European Reference Network for Rare, Undiagnosed and Low Incidence Skin Diseases was created. It brings together 56 healthcare providers from 18 different countries and 20 patient associations.
The main objective of ERN-Skin is to improve the quality of life of European patients. To do this, the network offers highly specialized treatments and daily support to patients in accordance with their local environment.
The Rare Skin Diseases Network and the Fondation René Touraine are important actors in the creation and coordination of ERN-Skin.
Every year, thousands of events are organized around the world during the month of February as part of Rare Disease Day. The main objective of this day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patients’ lives.
It is estimated that 1 in 20 people will have a rare disease at some point in their lives. Despite this, the majority of rare diseases cannot be cured and many are not diagnosed.
It is in this context that the Rare Skin Diseases Network created in 2015 a drawing competition to raise awareness on the theme of rare skin diseases.
This year, the poster for the 2020 drawing competition was beautifully made by the Ink Link association and more particularly by Laure Garancher.
The Ink link is an association of artists and professionals wishing to get involved in the development field through comics. This network supports non-profit organizations in their projects, by developing adapted and original materials.
This is how The Ink Link already made a commitment on the theme of rare skin diseases, with a great comic book project on Ehlers-Danlos syndromes.